Trans Surgery Reddit we need to talk

568
u/AkshullyAshley
Sat Oct 7 20:01:17 2023 UTC
(48 comments)

About the treatment of individuals with major complications that occurs in this subreddit.

Some of you may know me as the individual who runs the Sinai, NYU, and general surgery discord. I’m clearly not a sock puppet account sent here to lie to you. I’ve been active here for a long while. I had my own bouts of complications from my surgery this year that while they will leave me with no long term physical problem, they left me with severe mental health problems from the experience including PTSD and severe anxiety and depression. And in the grand scheme of things my case has been an easy one on the scale of complications.

Not everyone is going to have a grand result from surgery and I have multiple friends who for all intents have had life shattering complications they may never recover from and have been fighting to correct for literal years. And when those people try and share their story for perhaps a bit of support how does Reddit treat them? As liars, conservatives sent here to discourage you from bottom surgery, and other shitty lies which lead people to feel like they can never share their complication story for support. Spoilers: this is a MAJOR surgery and it can go hella wrong. Does it often? No, of course not. Will it happen to you? Of course the odds are no. But can it happen to you? Yes and mentally you should be prepared for that. There is a reason reputable surgeons drive complication rates into your head before surgery. Mistakes happen rarely. I blew off the statistics. 1 in 100? Never will happen of course. And then when multiple 1 in 100s happened to me I understood.

We as a community need to be better at being supportive to those who need this the most. They wanted this surgery as badly as you did. Some of them even don’t regret their decision and are still happier with what they got now. But the trauma and feeling alone in this doesn’t help. Chances are I’m screaming in the void but if for some reason this reached you: be better. Be supportive and stop ostracizing those who need us most.

all 48 comments



229
u/[deleted]
Sat Oct 7 20:18:35 2023 UTC
(14 children)

I blew off the statistics. 1 in 100? Never will happen of course. And then when multiple 1 in 100s happened to me I understood.

The surgeon that operated on my face told me the odds of a bad complication was just 1%, but then added, It won't matter though if you're the one. You'll still hate me

He was almost right. I was the one, but it wasn't the fact that it happened that made me angry. It was the fact that for over a year he denied it was a problem which allowed it to get worse and worse. It wasn't admitted until I connected with a different surgeon to fix it. Then he suddenly cared a bit, but the fix he proposed was half assed. This IMO is why the vast majority of these grudge matches start. It isn't because of the problem, but rather the refusal to accept and correct the problem when people have spent everything they have and then some on the first surgery.

Years ago, Dr O had an angry protester posting everywhere about him. He could have just fixed her problem, but no. He instead chose to act like she was crazy. I don't know why accepting blame and fixing the problems is so damn hard for some people. They'll still make tens of millions over the course of their career.

41
Sat Oct 7 23:12:19 2023 UTC
(0 children)

Literally my issue.

Telling me "this is fine" without telling me what's going on was the entire problem.

Why would I continue working with someone who's either in denial, or blind?

They didn't want to acknowledge anything until I was already consulting with another surgeon, and even then it was "you knew this could happen"

Then they got very upset when I asked "what happened?"

58
OP
Sat Oct 7 20:20:27 2023 UTC
(4 children)

I’m sorry that happened to you. That’s an awful experience to not be believed. Luckily my surgical team was great throughout my whole ordeal and I still can’t recommend them highly enough. I’ve never been shamed or gaslit.

22
Sun Oct 8 00:27:32 2023 UTC
(0 children)

I tell people the warranty is only as good as the support

3
Mon Oct 9 02:25:28 2023 UTC
(1 child)

Where did you go for surgery?

2
OP
Sat Nov 4 03:09:06 2023 UTC
(0 children)

Mount Sinai.

36
Sat Oct 7 21:05:38 2023 UTC
*
(1 child)

I agree. Its the denial of problems that causes the issues as they are so worried about liability. They dont realise that if they accepted responsibility and helped to fix the issues its way less likely we would want to sue them. There denial is what drives the legal action. If we all just cared a little more about each other most situations could be resolved without issue. Im so over the surgeons/doctors who wont take responsibility for there substandard work and a big thankyou and hugz to all the great doctors and surgeons who do take responsibility and make sure we are happy with the outcomes we pay ALOT of money for. We need more of you

4
Mon Oct 9 04:04:23 2023 UTC
(0 children)

Malcolm Gladwell has a bit in one of his books about how people don’t sue surgeons that they like, even when they make mistakes.

17
Sun Oct 8 06:00:46 2023 UTC
(0 children)

I strongly agree.

I don’t mind being the 1%. It’s when doctors ignore patients when they tell them something is wrong. Then what could’ve been a small repair and fix, ends up turning into a bigger issue with unrepairable damage.

It isn’t like we get compensated when doctors Ignore us when we complain. The doctors still walk away with our money, and then when it turns out we were right they just say “that sucks” like we weren’t begging them to help us before it got worst.

And the only person who suffers from this is the now messed up patient!

4
Mon Oct 9 00:50:49 2023 UTC
(0 children)

Yes! Trans people are a vulnerable population and it's acceptable for docs to abuse us because they know we won't be believed.

3
Mon Oct 9 04:05:34 2023 UTC
(0 children)

I see that pattern of people refusing to accept any blame and gaslighting all the time. It disgusts me and is one of the reasons why I’m always so quick to take blame for something

8
Sun Oct 8 04:05:34 2023 UTC
(0 children)

Unfortunately for all of us, admitting guilt is bad for continuing medical malpractice insurance for a doctor.Ego coupled with fear of financial consequences from insurers is enough for them to be willing to deny or delay admission and use the “hope it gets better” method.

Very few people who have elective surgeries (that would be us like it or not) actually sue or file complaints with insurance or accrediting boards. Since the odds of the Dr being punished through actual litigation and procedures is low and the risk of damage to practice by increasing malpractice insurance premiums is higher the calculus is easy to make. Deny until the calculus changes. Cynical? perhaps.

As much as money is potentially a factor, ego is probably greater. Surgeons, as mentioned in more than one psychological review of the career field have a bit of a god complex. Admitting that they actually made a mistake that manifests itself days or weeks after the surgery is just to easy for them to fall victim to their own cognitive dissonance and belief that it could not have been them. When this is what you do 99% perfectly the 1% error rate becomes easy to discount even when you are the one explaining it to the patient.

3
Mon Oct 9 06:45:54 2023 UTC
(0 children)

DAAAAAMNNNN.... fucking preach. I feel this in my bones

105
u/Wickedbitchoftheuk
Sat Oct 7 20:48:33 2023 UTC
*
(2 children)

I used to work in a newsagents shop selling lottery tickets. Dr comes in and waits in the queue while people in front buy tickets. Then when he gets to me he says, " they believe they will be the one in 26 million chance who wins, but when they see the warning on cigarette packets, think that they won't be the one in three unlucky ones." Stuck with me. We are our own best deceivers.

-24
Sun Oct 8 10:23:16 2023 UTC
(1 child)

Care to elaborate on why you compare the results of sex reassignment surgery with lottery?

14
Sun Oct 8 21:13:56 2023 UTC
(0 children)

i don't think the comparison is the results of the surgery to lottery, it's about the odds of something going wrong during surgery. people are willing to believe that they'll be the one in a million that gets lucky, but not the one in a hundred that gets horribly unlucky.

36
u/Marissa_Calm
Sun Oct 8 10:28:58 2023 UTC
(0 children)

To add to this:

If someone posts about having negative sideffects or other problems most people just ask "who was the surgeon" without offering help or support. As if it was so easy to weed out the "bad ones" Mistakes happen to everyone once in a while, negative sideffects happen to everyone. (Rarely but still do)

A single case of a bad outcime is no reason to distrust a surgeon.

What makes a good surgeon besides their successrate is how they deal with the situation when something happened.

39
u/Just_Tana
Sat Oct 7 20:50:14 2023 UTC
(3 children)

Legit I filed a grievance with the hospital that did my surgery. I picked my doctor because of what I saw on here. His assisting caused a huge complication which forced me to have several surgeries in the months following the initial surgery. Not being able to heal, dilate properly, the loss of some depth, or have intimacy with my fiancé has caused me a lot of distress to be honest. I know I’ll probably find another surgeon to do some revisions next year.

That said I know multiple people have posted this surgeons work since and their results have been wonderful.

Would I recommend my surgeon? Sure as long as his assisting is no where near you. Did he try to fix her mistake? Yes I genuinely believe he did. Was he able to fix everything? Nope not all. It’s rather frustrating. Do I still have pain? Yep daily and it makes me dread dilating. Am I happy I had bottom surgery? I mean I don’t have the same discomfort I did looking in the mirror previously.

Like things happen and honestly some of these surgeons can be such assholes they would never apologize when they make a mistake. I’ve had three other surgeries all done by one surgeon (FSS in two parts, BA done in two parts because we used fat grafting). Like I can’t speak highly enough about that surgeon. I don’t ever want to tell people to not go through with surgeries. Just know who’s operating on you. Know the risks .

18
OP
Sat Oct 7 20:54:32 2023 UTC
(0 children)

I’m so sorry that happened to you. I hope you’re on the path to a happier future and that the pain won’t be permanent. 🫂

4
Sun Oct 8 13:45:06 2023 UTC
(0 children)

Write a review and help the next person.

1
Wed Jan 1 20:23:13 2025 UTC
(0 children)

Hi I know this is an old post but do you mind sharing who was your Dr? I can PM you if that's better :)

61
u/Wickedbitchoftheuk
Sat Oct 7 20:17:11 2023 UTC
(0 children)

Great message. I think people are so psyched about the surgery and looking forward to getting rid of their dysphoria that they can't conceive of anything going wrong. But you're right. It's really major, very invasive surgery. Horrible things can happen even in small surgeries. And they do. So many of us have comorbidities as well - too thin, too fat, too high bmi, poor coping skills. Often caused by the very problems that the surgery is aimed at fixing. I feel surgeons have to be a whole lot more honest about potential complications, especially for people with weight or mental health issues. This is not surgery that you can just hope it gets better by itself. You need to proactively look after yourself. But you should be given the information WITHOUT feeling that the surgeon is being transphobic or being urged by others on reddit to 'get a second opinion' because sometimes we need to hear all the potential bad stuff too.

15
u/ShadowPouncer
Sun Oct 8 07:14:42 2023 UTC
(1 child)

Potential complications are one of the reasons why I am quite unsure WTF I want in the way of bottom surgery.

Hell, just the recovery from everything going perfectly well is a reason for me to be unsure.

And, how to put this...

I am going to be one of the people with complications.

Going by statistics from a hospital in Oregon, which sadly had very few transfem people in the data, the complications are unlikely to be horrific, but... They are probably going to happen .

And 'how does this compare to what would normally be expected' is something that I need to be answered honestly.

To the point that if I do ever go for bottom surgery, I'm likely to ask the surgeon for some general examples of cases where things went wrong, and how they were addressed. General examples because I obviously do not want HIPAA protected information.

But I absolutely want to know what kinds of complications they have encountered, and if they fixed them, if someone else fixed them, and what kinds of fixes were found to be appropriate.

Anyone who claims to have not had any significant complications? I'm likely to walk away, simply because complications happen .

You can do everything right, and still have shit go wrong.

5
Sun Oct 8 17:00:34 2023 UTC
(0 children)

4 weeks post-op bottom surgery from OHSU. During pre-op visits they showed us photos of potential post op complications and explained that there was a chance of damage during surgery. Our healing is going well but we are on our second UTI in four weeks. Stuff happens, it’s not their fault and I’m following their instructions to the letter. We had a gender nullification and couldn’t be happier. Three months of two showers a day, walking less than 2,000 steps a day and lifting less than 10 lbs a day is mentally a challenge. But overdoing it, sucks ass, we did that twice and spent days in bed recovering. We have fibromyalgia which complicates things but overall we are so at peace with our surgery and the Urology team at OHSU.

12
u/small_stargazer
Sat Oct 7 22:50:05 2023 UTC
(0 children)

Thank you for this post. As someone with life-altering complications, it's really scary for me to step forward and discuss my situation.

What I want, more than anything else, is to help prepare others who are about to undergo surgery, but it's hard to be helpful when all I can offer is my own experience and my complications.

u/[deleted]
Sat Oct 7 20:38:18 2023 UTC
(1 child)

[removed]

17
Sat Oct 7 23:25:44 2023 UTC
(0 children)

you have to go against all odds all the time anyway

35
u/tringle1
Sat Oct 7 20:13:04 2023 UTC
(0 children)

This is a fantastic post, and whileI don’t really comment here, I hope those who do take your message to heart rather than dismissing it.

27
u/RedQueenNatalie
Sat Oct 7 22:02:04 2023 UTC
(0 children)

Here here, this is the truth and this sub needs to take it seriously. This sub is one of the worst trans subs for its attitude towards people. Judgmental, self-centered attitudes towards the patients in this community where only things that validate what you feel are valid. Im sorry but that is simply not the reality of major surgeries. This shit can suck. It went great for me but I can point to some one from my same surgeon who had horrible unforseeable complications and 5 others who did alright but didn't feel like sharing their experiences.

17
u/ashleygison45
Sat Oct 7 20:56:03 2023 UTC
(0 children)

Amen Ashley. Excellent message. And yes, I'm the Ashley on the Mt Sinai Discord server with you as well.

6
u/valkyri-
Sun Oct 8 19:48:40 2023 UTC
(0 children)

I’m on mobile and don’t know how to quote shit but “ be better. Be supportive and stop ostracizing” are things that the trans community in general need to be better. We get hate more than anyone else normally and it’s not right to then turn that around and dish it back out to people. Treat people the way you wanna be treated and that’s that.. this reason alone is why I hardly do anything with the trans community because it’s full of hateful people and it’s super sad tbh…

5
u/Goblinqueen42069
Sun Oct 8 20:06:56 2023 UTC
(0 children)

I never understood the desire of people to be cruel to each other just because it's hard for most people to figure out who they are. The whole point of having society and civilization is that we are stronger together, and it has been for thousands of years, and yet there have always been some who decide to hate others and make life harder. The internet just gives those people a way to hide themselves publicly while they treat others as less than human. All we can do is be supportive where we can and refuse to go back into the closet. We deserve to have safe spaces to talk about our experiences and to seek comfort and advice from our peers.

On the topic of surgeons, their refusal to take responsibility, and the overall societal shoulder shrug to those of us suffering with complications after an elective but still very necessary and personal procedure: I have been lucky enough to have a medical education and have worked as a nurse and therefore have the knowledge and language to advocate for myself effectively, but most have not. One of the massive issues with GCS is that while we have general guidelines like WPATH, there is no governing body or board of overseers for trans surgeries. Other than individual litigation, there is no one to hold the surgeons who see their patients as a means to make a profit or who lack the necessary experience to perform these surgeries, accountable. What is more concerning is there is no real concrete certification process for trans surgeries in the US.

I do want to say this though. Don't let all of this dissuade you from getting any surgery that you need to feel whole. There are good surgeons, good medical staff, and good facilities that can provide you the care that you need. There are good people both on this subreddit and other places both in the real world and online who will support you in any way that they can. Don't let assholes keep you down or stop you from being who you are.

All we can do is stay strong, help each other, and weed out those with ill intent as we find them. We are stronger together.

9
u/Nonnamed1
Sun Oct 8 00:09:59 2023 UTC
(0 children)

Thank you, Ashley, for speaking to this. I know how hard the complications have been for you and it's so heartbreaking that this community hasn't been available for it. You name good reasons for that: avoidance because we don't want to think it could be us, fear of any non-happiness being used against us politically, etc. But those fears, however legitimate or not, should not excuses for not holding each other up and taking care of each other. We desperately need each other. We must be here for and recognize each other in this complexity.

Thank you again. 🖤

5
u/EnderArchery
Mon Oct 9 07:25:51 2023 UTC
(0 children)

I agree. People share their story here, but instead they feel shame and often delete their posts instead of getting help or even just encouragement.

If this sub was more open for that, everybody would have it easier. And also a broader base of information for research that isn't biased. (Which literally just helps picking the right surgeon for you.)

4
u/mszoeyrose
Thu Oct 12 18:37:57 2023 UTC
(1 child)

I am one who has ended up with life-altering issues stemming from my original GCS, albeit temporarily. My first surgery was in 2021 and I ended up needing five more surgeries and times going under to get the problem fixed and back on with my life. This year I decided to get my canal redone since it completely collapsed, and every surgeon I met with said the chance of re-injury was high, but I was willing to take the risk, only to end up with the area re-injured. I've already had three surgeries to get me stable, with at least one more hopefully before the year is up. It's been one hell of a journey. I'll be left with zero depth and it is something I have come to be okay with after lots of work with my thearpist.

Both surgeons have been helpful through the whole process, and I never felt pushed aside. Neither of them tried to shirk responsibility.

The thing is, I don't regret it one bit. I've been accused of saying that my reaction is a "cope," but it really isn't. I've been told I shouldn't be sharing my story because it might scare someone off of getting "the surgery." But, for me, my dysphoria is all but gone. I no longer have to disassociate at doctors to be naked from the waist down. I no longer have a constant reminder every day, and for that, I'm forever grateful. I truly do feel comfortable in my body, even with the perceived flaws.

Thank you Ashley for sharing this sentiment here, as it needed to be said. The small percentage of us who have had this level of issues should not be silenced or accused of being a plant by our own community.

5
OP
Thu Oct 12 18:41:19 2023 UTC
(0 children)

Love you friend and you know I’ll always be your biggest cheerleader. 🫂

2
u/[deleted]
Mon Oct 9 20:23:40 2023 UTC
(0 children)

Amen to that. I stopped posturing because I was nailed every time and everyone I know who got bot hard or got issues also stopped because there was no compassion and simply gaslighting of surgeons.

Thanks for your post.

4
u/thetitleofmybook
Sun Oct 8 00:33:10 2023 UTC
(4 children)

while i mostly agree with you, far too many of the posts like that explicitly and implicitly recommend against gender affirming surgery, and that no one should ever get it.

when the alternative to gender affirming surgery is....just not existing anymore, yeah, that's not a good recommendation

17
OP
Sun Oct 8 03:12:06 2023 UTC
(2 children)

People love to speak in Hyperbole but you have to realize most of them went through something highly traumatic and feel their lives are ruined.

-2
Sun Oct 8 20:02:18 2023 UTC
(0 children)

Honestly it might make sense for this sub to go private to keep people like that out.

-3
Sun Oct 8 20:01:15 2023 UTC
(0 children)

Can we strike a healthy medium between being supportive and not being a place that is used constantly by conservatives and people who are detrans to spread bullshit lies by saying every bad surgery here is what is the “problem” with trans people? Like, I’ve seen reposts on other subs of pics from this sub with nasty talking points and it’s so, so disheartening.

3
Sun Oct 8 10:25:12 2023 UTC
(0 children)

AFAIK nobody has advised anyone not to get gender confirmation surgery on this subreddit. It's the opposite.

-1
u/Sissyfromhell
Sun Oct 8 21:08:05 2023 UTC
(0 children)

I haven’t witnessed any of that here. I think we’re all aware any surgery can have minor to major complications, difficulty healing, and undesirable outcomes at the very least.

1
u/Stunning-Detail8338
Wed Oct 11 00:05:46 2023 UTC
(1 child)

Hi I'm F18 trans and wanted to do an GRS vaginoplasty, but I'm worried I can't find an surgeon with loads of experience. Any advice on what places are the best to to get surgeries?

1
Wed Oct 11 01:28:54 2023 UTC
(0 children)

Look in the wiki here using a web browser.