I struggled with bad surgical results too, although mine was related to FFS and not GCS.

My original surgeon tried to tell me most of my face was "fine" and said there was no way to correct the scarring that he had caused. The solution he proposed was just to try to hide it with hair grafts.

I did my due diligence and consulted some other surgeons. No one else believed it was unfixable. I picked a different surgeon for my revisions and got a lot of the problems I had fixed.

The point of this is I think you need to seek more opinions and not tacitly accept what you're surgeon is telling you at this point. You need to talk to Rachel Bluebond-Langner and Marci Bowers and see what they think. I don't see any reason why colon or peritoneal tissue should scar the same way as a skin graft. There is still hope to cling to!

I am really sorry it happened to you. I can only empathize and send you all my love and support. I don't have a solution unfortunately, but if you need to speak, or just vent, I am here! Don't hesitate to reach out.

CONSULT WITH MORE DOCTORS!!

Don't accept the status quo at this point. Other providers can help you. I understand that the cost seems like an impossible barrier, but I promise you it's not. Many, many surgeons have resources to help you through the cost, especially for a case like this. Your doctor was human enough to fuck up surgery - they're human enough to incorrectly think it's impossible to correct.

You will get through this if you get the right medical attention. You can consult with practically anyone in the world for a very limited cost. They can tell you what your options really are.

" Yeah, the doctor wants to perform a vaginal obliteration (seriously, that's what it's called) to completely close up my vagina forever. "

Really time to abandon this surgeon. My 2c.

Im so terribly sorry. I wish that there was some way to help you other than kind words on my end. I hope with all my heart things get better for you, or at least easier. Maybe some doctor somewhere has experience that can help you sort this out. At the very least I hope you can stop being in pain and find peace, even sometimes.

It really sounds like never going back to this surgeon is the way to go. I hope you’re able to find other professionals that accept your insurance because this person clearly did you wrong.

I’m sorry to hear that this happened to you and that you’re lacking support. I wish you the best in finding the emotional and medical support you need! You definitely deserve better than what you’re currently getting

I don’t know if any I say will be helpful, but I’m glad that you used this post to express the pain you’re feeling rather than bottling it up. I’m so sorry that you feel alone in this situation. And I’m so sorry you’re having to live with both physical and emotional pain as a result of a poor surgical outcome. I’ve not personally had GCS myself yet (or my consult) so I feel unable to provide you w/ resources on support groups since I’m still learning stuff myself.

I won’t refuse to speak to you. I’m sure how helpful I can be, but I’d like to offer what support I can.

I am so sorry that you are dealing with this. But I am pretty sure that a peritoneal revision or colon could fix your vagina cavity (with a reputable surgeon) im aware that you dont have tbe money now, but what about creating a go fund me and telling your story in the internet so we can donate money to you

I'm a doctor, but I don't do anything like reconstructive surgical medicine or hormone therapy. I follow this sub for my own education and to better understand my patients.

Do you potentially have an autoimmune disease? Any personal or family history of chronic fatigue syndrome, connective tissue disorders, or anything "kinda different"? I tend to see people with bizarre conditions that no one else could figure out and were instead labeled as "fibro" or "psychosomatic disorder" or some other non-committal nonsense (most corporate employed Docs lack time to do a proper investigation)... you might have something underlying your extreme bodily response to surgical scarring. It's my experience that even great surgeons have virtually zero knowledge of medical conditions outside the basics, especially things like autoimmune or genetic diagnoses. This might be worth investigating. Feel free to contact me privately and I'll see what I can do to help you out or at least suggest possible people to help. :)

I didn't have SRS but FFS and butcher and murderer Bart Van de Ven botched me. He did it on purpose cause I didn't want my entire face worked on. It's been over a year and I still retain the damages he has done to me and I have my okay days and my horrible days. I don't know what to suggest but to let all your emotions out and cry as much as you need. These failed surgeries definitely change our future for the worse but we have no choice but to continue living. I also lost my job and because of it could not get any sort of revision done and to be frank I'm scared. I hope you feel better soon and find a surgeon who can fix your issues. I'd not go back to the surgeon who failed your surgery twice. Good luck!

Atm the following might be an option :

here were some hints concerning complications,

and here were a number of additional hints by someone who also had issues.

And trying to install a natural flora by eating probiotic yoghurt immediately. It can help repopulate the digestive tract with a natural flora after antibiotics etc., and also a neovagina. Many people said it helped fend off an infection.

Trying to solve issues with infections first may be necessary now, and step by step trying to dilate.

Some people use a metal rod for dilation, only use rounded ones at the end, and they should not be too small in diameter. Use a condom and safe materials etc. Maybe it would be possible to have one custom made of stainless steel, it should not be much at local crafts places.

Talking it through with your med persons in case may be an option.

Asking another surgeon about their opinion may be a good idea. Here might be an option, Wittenberg may be another possibilitiy. It may be possible to at least ask for advice. Their contacts are in the wiki.

And some people who had issues with scar contracting try different lubes ... coconut oil has small molecules and can make for a softening, some people try estrogen cream, testosterone cream could also be tried, and some people carefully use Suporns method of dynamic dilation. Here it was described, and also effects of coocnut oil ( P. 136 : "it penetrates and moisturises the skin it's said to accelerate healing times considerably". Its not sterile though so considering when to use it may be necessary. I personally have used it after electrolysis and never had issues, and there was a very noticeable difference with and without with healing and also swelling etc.)

Effects Of Testosterone

Here was a hint to cream :

"Post SRS it can be used weekly during a dilation session (by coating the dilator) and sometimes can help achieve additional depth due to increasing tissue elasticity. "

And here might be some additional hints. And looking into Contractubex and Cicaplast may also be an option.

Hope you find a few ways that work for you.

scarring

Imo surgeons should test for this and discuss measurements for people who have issues. People who know they scar heavily could either use less scarring techniques, or try to do a few things like integrating some features from a dynamic dilation.

hugs