[deleted by user]

63
u/[deleted]
Thu Dec 23 16:43:02 2021 UTC
(41 comments)

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all 41 comments



u/[deleted]
Thu Dec 23 20:22:13 2021 UTC
(2 children)

[deleted]

8
Thu Dec 23 21:06:35 2021 UTC
(0 children)

im really happy this sub was able to help you realise you needed help. i really hope everything goes okay for you!! xx sending you strength

u/[deleted]
Thu Dec 23 17:32:57 2021 UTC
(1 child)

[deleted]

9
Fri Dec 24 04:37:12 2021 UTC
(0 children)

Left to her own luck. Those surgeons need to be put on a black list right now.

28
u/thought_criminal22
Thu Dec 23 16:52:52 2021 UTC
(0 children)

You may have a fistula and that needs to be addressed right away, especially this close to surgery when sepsis is a real danger.

u/[deleted]
Fri Dec 24 13:05:29 2021 UTC
(7 children)

[deleted]

Fri Dec 24 16:12:55 2021 UTC
(5 children)

[deleted]

Fri Dec 24 18:28:54 2021 UTC
(4 children)

[deleted]

Fri Dec 24 23:05:59 2021 UTC
(1 child)

[deleted]

2
Fri Dec 24 22:18:52 2021 UTC
(1 child)

What state are you currently in?

21
u/thewisewitch
Thu Dec 23 17:23:27 2021 UTC
*
(0 children)

This is fecal matter. You have a fistula. You should probably get the doctor to fix this pronto. I'd demand it immediately from your doctor, did you show him these photos?

u/[deleted]
Sun Dec 26 14:06:13 2021 UTC
(1 child)

[deleted]

23
u/MyUntoldSecrets
Thu Dec 23 16:45:57 2021 UTC
*
(3 children)

I don't want to unsettle you but I have never seen that in any patient who had it done and I had neither of that myself. Not this color and consistency. This very much looks like poop to me.

There is nothing else that could turn into this color. Dead skin cells turns white and the blood would just be red to dark red/black.

Thu Dec 23 16:47:20 2021 UTC
(1 child)

[deleted]

22
Thu Dec 23 16:50:04 2021 UTC
(0 children)

That's likely a rectovaginal fistula and a surgeon who doesn't want to admit it.

u/[deleted]
Mon Dec 27 15:49:49 2021 UTC
(2 children)

[deleted]

Mon Dec 27 16:29:38 2021 UTC
(1 child)

[deleted]

u/[deleted]
Wed Dec 29 19:22:29 2021 UTC
(2 children)

[deleted]

3
Thu Dec 30 15:58:18 2021 UTC
(0 children)

Please keep us updated, especially on how your doctor is following up with you. We are very concerned about how he treated you in the midst of all of this.

u/[deleted]
Fri Dec 24 05:03:58 2021 UTC
(2 children)

[deleted]

2
Fri Dec 24 05:23:32 2021 UTC
(0 children)

Rest well and by smol I hope its positive that a major procedure doesn't need to be do e..

Have you or the hospital since been in Contact with Dr. Ramineni? If I remember you're quite some distance away right?

u/[deleted]
Wed Dec 29 10:50:32 2021 UTC
(1 child)

[deleted]

1
Wed Dec 29 18:52:57 2021 UTC
(0 children)

What’s the update, do hope the surgery went well? Thinking of you

u/[deleted]
Thu Jan 6 13:18:45 2022 UTC
(3 children)

[deleted]

u/[deleted]
Sat Jan 15 21:12:40 2022 UTC
(4 children)

[deleted]

Sun Jan 16 16:30:30 2022 UTC
(3 children)

[deleted]

Mon Jan 17 21:39:31 2022 UTC
(2 children)

[deleted]

5
Mon Jan 17 23:40:23 2022 UTC
(1 child)

I want to emphasize strongly that what you experienced is not normal or safe or standard practice. I’ve never seen another SRS surgeon, ever, behave with such disregard for their patient when they developed what were obviously life-threatening complications. It’s beyond belief that he not only failed to spot the obviously massive (3!) fistulas during surgery but then, when you had obvious fecal discharge and internal bleeding, told you to stay home for a week and just “not dilate” until you could come in to the office. I shudder to think what may have happened had you not ignored him and gone to the ER on your own instead. And then, on top of all that, he never did even do the proper treatment to fix the issues.

This is a a dangerous surgeon who is a risk to the trans community. It’s rare that I would feel comfortable making such a statement, but this is one such time. I sincerely hope the word gets out because I don’t want anybody else to have to go through what you have. I’m so glad you’re okay, and now that you’re stable you’ve got time to start the search for a new surgeon to fix you up. Thank you for sharing your experience, as it may have saved somebody else down the road.

1
Mon Feb 5 21:33:37 2024 UTC
(0 children)

By seeing 3 fistulas would that be a sign to not have the canal made due to risks?

u/[deleted]
Sun Jan 9 14:44:32 2022 UTC
(7 children)

[deleted]

2
Tue Jan 11 20:19:36 2022 UTC
(0 children)

I’m really sorry this happened to you. Can I ask if you did ppt or inversion?

2
Fri Jan 14 21:03:35 2022 UTC
(0 children)

updates?? are u okay?? i’m so sorry

2
Mon Jan 10 07:34:10 2022 UTC
(1 child)

that's really awful, to hear that you're having so many problems and such a rough time. if you wanted to set up a gofundme or something similar, i'm sure some people here (myself included) would be happy to share it around (not sure if/how thats allowed in THIS sub's rules, specifically, tho). we believe in you and all want you to be ok. do what you can to take care of yourself <3

1
Mon Jan 10 11:18:30 2022 UTC
(0 children)

CashApp or something; this is so sad.

6
u/[deleted]
Thu Dec 23 22:27:25 2021 UTC
(0 children)

Absolutely that’s a fecal matter . Fistula, sepsis, can also cause peritonitis depending on the location of fistula. all these are life-threatening situation and ER visit is a must. Make sure to go to a competent hospital, trauma hospital at least, so they can do the emergency surgery the quickest. The other user is right - you might need a temporary colostomy to let that fistual area heal , probably 6-8 months, then reverse it later on.

u/[deleted]
Thu Dec 23 18:45:28 2021 UTC
(8 children)

[deleted]

Thu Dec 23 19:06:41 2021 UTC
(2 children)

[deleted]

Thu Dec 23 19:08:08 2021 UTC
(1 child)

[deleted]

11
Thu Dec 23 19:50:57 2021 UTC
(0 children)

Who the hell is your surgeon? It sounds like they not want to ruin their xmas to fix their fuckup.

9
Thu Dec 23 19:09:54 2021 UTC
(3 children)

Do NOT wait!! They need to see you today! Please at least go to the ER. This is really serious and puts your health at major risk.

Thu Dec 23 19:10:36 2021 UTC
(2 children)

[deleted]

4
Thu Dec 23 19:11:50 2021 UTC
(0 children)

Good!! Please take care and feel better asap

2
Thu Dec 23 20:34:18 2021 UTC
(0 children)

Keep us updated. Hope everything is ok.

5
u/AlternativePen4183
Fri Dec 24 19:24:34 2021 UTC
(0 children)

Wait till Monday??? Lawsuit like a mf.........

u/[deleted]
Sat Dec 25 11:01:48 2021 UTC
(18 children)

[deleted]

2
Sat Dec 25 12:00:38 2021 UTC
(7 children)

I'm assuming they have you NPO. How often are they checking your hematocrit level? Is your mom in the hospital room with you?

Sat Dec 25 12:56:23 2021 UTC
(6 children)

[deleted]

6
Sat Dec 25 14:23:25 2021 UTC
(5 children)

That sounds like he talking about your hemoglobin level and for trans woman that should be between something like 13 and 17. Anything below 7 they give you a blood transfusion. So if you were at six sitting at home and he wanted you to wait till Monday.......smh I hope you and your mama get in his ass when y'all see him Monday. Jesus.........

When they come in and do your next round of labs make sure you ask about your hemoglobin and hematocrit levels. If you start running a fever or your pelvis starts feeling warm and hot make sure you post here and let us know.

Sat Dec 25 14:33:14 2021 UTC
(4 children)

[deleted]

Sat Dec 25 18:45:44 2021 UTC
(3 children)

[deleted]

Sat Dec 25 19:03:47 2021 UTC
(2 children)

[deleted]

Sat Dec 25 19:24:25 2021 UTC
(1 child)

[deleted]

2
Sat Dec 25 12:03:58 2021 UTC
(7 children)

I also want to let you know that this is a totally fixable situation. A fistula can happen in a natal woman doing childbirth. Happens in pitbulls too! It'll be a couple of surgeries but this is repairable and you will be back to functioning in time. If you have access to research gate there are published case studies that cover neovaginal fistulas. It happens.

Sat Dec 25 13:02:46 2021 UTC
(6 children)

[deleted]

Sat Dec 25 16:01:12 2021 UTC
(3 children)

[deleted]

Sat Dec 25 16:06:11 2021 UTC
(2 children)

[deleted]

Sat Dec 25 16:16:58 2021 UTC
(1 child)

[deleted]

2
Sat Dec 25 14:16:45 2021 UTC
*
(1 child)

1) Yes. But if you are that concerned (and have money money) you could have arange for medevac transport via air.

  1. Yes. It would be more than 1 surgery (colostomy, repair, rehook, 2nd possible vaginoplasty).

  2. Don't know the answer to this one. I think I'm going to read up on it. I've never heard of anyone having reoccurring fistulas after SRS.

Sat Dec 25 15:53:24 2021 UTC
(1 child)

[deleted]

5
u/meetoo1234
Sat Dec 25 23:58:48 2021 UTC
(1 child)

Just wanted to say a few quick words of advice from someone who’s had far too much experience with hospitals, ERs, surgeries and surgeons.

I say this to prep you to try and get the best care and not to scare you. So keep in mind these are things you can and should say to your care team, in my opinion.

I’d dare say that this could easily be life threatening. You could bleed out, you could get sepsis/get septic shock, you could have any other number of issues to get to your surgeon .

Normally, if you were close, the surgeon who did the work would be able to sign off that it’s medically necessitated that you be monitored en route to your next hospital. Therefore, they should order an ambulance and your insurance should cover it or at least most of it.

Your current team should also be able to call the incoming hospital to expect you as a transport in. This should mean you should basically go straight from one hospital room right to the next. They’ll already have your current case information and should have your doctor or a specialist available to you once you arrive and their shift starts. Even before that you should have nurses monitoring you and the rotating docs checking in.

IF your surgeon isn’t there to receive you, find out when he will be there. Ask if he’s going to be there that day, the next, etc. you should be a very high priority for him or a colleague of his.

Take this seriously, so that they treat it seriously. It’s one thing to be polite and nice, but you do also have to let them know what it means to you. To your future. Firm but polite. Loud and self assured when you need to be.

But just know, personally. Even if you need transfusions. Even if you need surgery or emergency surgery. No matter what, everything you’re going through has happened before and all doctors should be able to make you comfortable and safe while in their care and even in between two different hospitals. You’re going to be fine. You’re going to heal. And then you’ll have some great stories to tell at parties.

You got it!

u/[deleted]
Tue Dec 28 13:19:55 2021 UTC
(5 children)

[deleted]

Tue Dec 28 15:58:50 2021 UTC
(1 child)

[deleted]

Tue Dec 28 16:48:22 2021 UTC
(2 children)

[deleted]

Tue Dec 28 17:33:21 2021 UTC
(1 child)

[deleted]

4
u/MrOnionPants
Wed Dec 29 01:33:38 2021 UTC
(0 children)

Your doctor committed what appears to be gross malpractice by telling you to wait, and I strongly encourage you to seek legal counsel when you are feeling well enough. You may require a lot of additional care and out of pocket expenses because of that delay, I DO NOT CARE WHAT TIME OF YEAR IT WAS. And you should not have to pay those expenses because of a doctor's negligence (or recklessness).

Unacceptable to have shrugged it off like this. Absolutely unacceptable. I wish you a swift recovery.

u/[deleted]
Thu Dec 30 19:44:52 2021 UTC
(6 children)

[deleted]

Thu Dec 30 20:16:33 2021 UTC
(3 children)

[deleted]

Sat Jan 1 19:33:24 2022 UTC
(2 children)

[deleted]

Sat Jan 1 23:12:26 2022 UTC
(1 child)

[deleted]

3
u/Icy-Yogurt-Leah
Thu Dec 23 17:48:27 2021 UTC
(0 children)

I would go to A&E immediately and take the pad with you.

They can tell if it is a fistula and should carry out a colostomy to bypass the area that needs to be repaired by your surgeon.

3
u/52jag
Fri Dec 24 05:11:28 2021 UTC
(0 children)

My first thought is a fistula.

u/[deleted]
Tue Jan 4 07:06:47 2022 UTC
(3 children)

[deleted]

1
Thu Jan 6 03:00:15 2022 UTC
(0 children)

Out of which hole?

2
u/Hypermug
Fri Dec 24 04:39:22 2021 UTC
(0 children)

Thank you for sharing this, and please let us know if you're OK!!

u/[deleted]
Sun Dec 26 15:47:57 2021 UTC
(2 children)

[deleted]

Sun Dec 26 16:13:12 2021 UTC
(1 child)

[deleted]

u/[deleted]
Sun Jan 2 15:11:13 2022 UTC
(2 children)

[deleted]

Sun Jan 2 17:32:54 2022 UTC
(1 child)

[deleted]

4
u/MotorSuccotash1825
Thu Dec 23 23:20:59 2021 UTC
(0 children)

Baby that’s not discharge that’s poop!!!

1
u/WolfieWiccan
Tue Dec 28 08:54:03 2021 UTC
(0 children)

I’m so sorry OP, I hope your doctor is able to get you into surgery to fix this quick

1
u/eleazarvan
Sun May 15 10:48:19 2022 UTC
(0 children)

Did this get resolved?