Shoulder narrowing/clavicle reduction consultation with Dr. Eppley (more in comments)

208
u/Sad111Suit
Thu Jul 14 14:27:34 2022 UTC
(63 comments)

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all 63 comments



87
u/ButINeedThatUsername
Thu Jul 14 19:17:34 2022 UTC
(18 children)

I underwent the surgery (with a different surgeon) for the same reason and the same background. My result is clear, however I have since been fighting with a ton of difficulties almost three years later..

Disclaimer; Before I continue please be aware that this is my personal experience and mine alone.

When I went in I knew what I was in for (including all the risks). I had both of my clavicles done at the same time and that was my first mistake. This made me extremely dependent on external help. I could barely move or do stuff on my own the first two weeks. It got a lot better a month in though.

Half a year later, during the next check-up, my x-ray showed that one of my shoulders hasn't reconnected and that there now was a gap between my bones. That's called pseudarthrosis. (I was 20 back then and really healthy.)

We tried "sound-wave-therapy", but that didn't help. Long story short I had to get another surgery to re-break my bone, get a bone donor from my hip area transplanted into my shoulder, and everything replated. That didn't add any extra length to my shoulders, but it left a big scar on my hips.

Just after the second surgery the other shoulder broke. They told me that they didn't see it back then on the xray, but the bone was still too fragile and just snapped after making a rapid move.

So now I am almost three years after the initial surgery, one shoulder broken and not plated, the other shoulder re-plated + a hip bone transplant, and my hip has a big scar on it and the missing bone thing feels weird when touching it.

I am way less mobile than I was before, I experience pain daily and will probably have to undergo at least two to three future surgeries to fix everything up again... if that's even possible at this point.

36
OP
Thu Jul 14 21:29:00 2022 UTC
(1 child)

It pains me to hear your experience, especially how intense and involved it is going to be to make a recovery. It does seem possibly negligent on the surgeons fault to not have had more follow up on your healing process.

I’m hoping I can regularly go to doctor apts in my home town to check in on how the bones are healing, I want to keep a close eye on on how it heals. I wonder if catching the pseudarthrosis earlier would have made things less complicated for you?

9
Thu Mar 30 15:47:43 2023 UTC
(0 children)

Please tell the surgeon so someone doesn’t walk into someone who doesn’t know what they are doing.

17
Thu Jul 14 19:34:06 2022 UTC
(3 children)

I'm sorry to hear that, have you sought out any further interventions to address the problem?

Most importantly, who was your surgeon?

14
Thu Jul 14 19:40:54 2022 UTC
(2 children)

I'm sorry to hear that, have you sought out any further interventions to address the problem?

Apart from surgeries, what other intervention do you think could be benefitial in my situation?

10
Thu Jul 14 19:59:30 2022 UTC
*
(0 children)

That was my question to you, I just imagined you were furiously researching things and you mentioned future surgeries. I'm happy to betray my ignorance, is it an issue with your osteoblasts?

This paper makes the point that in children the healing is more reliable, is it due to variables like increased stem cell counts?

van der Water, L., Macken, A.A., Eygendaal, D. and van Bergen, C.J., 2022. Pediatric clavicle fractures and congenital pseudarthrosis unraveled. Children, 9(1), p.49.

This paper discusses the impact screw length can have on healing, is this something your surgeon(s) are aware of?

Lee, N.J., Vulapalli, M., Park, P., Kim, J.S., Boddapati, V., Mathew, J., Amorosa, L.F., Sardar, Z.M., Lehman, R.A. and Riew, K.D., 2020. Does screw length for primary two-level ACDF influence pseudarthrosis risk?. The Spine Journal, 20(11), pp.1752-1760.

I know NOTHING about this and am just trying to learn as much as I can while I have an interest in other people's experience.

PS: If I message you, would you be willing to give me your surgeon's name?

Thu Jul 14 20:06:02 2022 UTC
(5 children)

[deleted]

4
Thu Jul 14 20:10:39 2022 UTC
(2 children)

Heya, your experience interests me, have you done a write up of your shoulder narrowing journey?

Thu Jul 14 20:15:32 2022 UTC
(1 child)

[deleted]

4
Thu Jul 14 20:23:55 2022 UTC
(0 children)

It would be very generous if you did, there's so little information on it at the moment. :[

Glad everything is looking good for you so far. :]

3
Tue Jul 19 08:33:13 2022 UTC
(1 child)

How much did the surgery cost with him?

3
Fri Jul 15 02:35:27 2022 UTC
(0 children)

I was in tear to hear that from you. How life was so difficult for us! :(

3
Mon Apr 3 16:16:08 2023 UTC
(0 children)

Did you surgeon not bolt the bones together? Did they just like leave them to heal on their own?

2
Fri Oct 4 12:53:13 2024 UTC
(0 children)

I’m so sorry to hear about your issues with this surgery. I went to Dr Ann Sluzky and Dr Bagrat Baveyan in Yerevan, Armenia with the facemaker team. I had zero issues post op with this surgery and I’m sure they can work with revisions if necessary.

23
u/zante2033
Thu Jul 14 19:38:02 2022 UTC
*
(5 children)

Not going to lie, I long for this as well and the predicted outcome is enticing - your experience before and after you make any decisions is helpful to me. The procedure is very dangerous however.

Has Dr Eppley got any patient data by way of complication rates vs success?

How does he deal with complications?

What is his mortality rate?

How has he brought his own innovations to this surgery (what has he learned in his time doing it?) and what measures does he take to ensure it heals reliably?

Have you spoken to any of his previous clients? - u/Throw72away777777722 seems to have been through something similar.

Lastly, beware of charisma without data when it comes to surgeons and, if the deposit is non-refundable, get your answers and guarantees in writing.

3
cisgender
Tue May 14 05:07:47 2024 UTC
(0 children)

Everytime I have emailed or called dr. Eppley’s office, his staff has answered promptly & always provide a quote of Eppley’s thoughts on the situation. After surgery his nurse insisted on calling him if anything wasn’t well & that he has driven to check up on patients if there was suspicions of complications.

Thu Jul 14 20:00:56 2022 UTC
(3 children)

[deleted]

13
Thu Jul 14 20:03:29 2022 UTC
*
(2 children)

I've had major FFS so I know the risks, I had a "significant" hematoma during my op and am lucky to be alive. :]

Specifically, the additional complications have been mentioned in this thread already but pseudarthrosis is the main additional risk here, in addition to mobility issues and chronic pain.

Thu Jul 14 20:13:01 2022 UTC
(1 child)

[deleted]

15
Thu Jul 14 20:28:12 2022 UTC
(0 children)

Don't misunderstand me, it's the lack of data. We need pioneering surgeries like this (well, they've been done for different reasons thus far) and reporting on patient outcomes. I'd do it in a heartbeat if a surgeon had a 98% success rate, was publishing research and had an army of patient advocates.

It's the context of the surgery that sets it apart, we aren't dealing with prior trauma here, this is for cosmetic (and arguably mental health) reasons. There's just so little information but, happily, we're starting to see more anecdotal stuff at least. :]

44
u/glenriver
Thu Jul 14 16:14:20 2022 UTC
(1 child)

I haven't had surgery with him yet, but my impression in the consultation for this surgery was extremely positive. He was 100% up front and knowledgeable. I felt like I could ask literally anything and he'd give me his objective take on it without any rose-colored marketing BS.

A lot of the negatives I've heard around him are 2 things:

  1. He doesn't care about inclusive language. When talking to a trans woman he'll freely use terms like, "male body" etc without any attempt to be more tactful. He's happy to help us, but I get the sense that he doesn't really care how we identify. It's more of, "It's your body, and IDGAF what you want changed, I'm happy to help."
  2. He's not an artist, he's a technician. He'll do exactly what you ask him to do. This is why I went elsewhere for my BBL-- I wanted someone who could apply their own aesthetic eye to create the right curves for me. For this procedure though, that's completely irrelevant. It's 100% technical skill.
6
cisgender
Tue May 14 05:05:41 2024 UTC
(0 children)

I went to him twice for multiple facial surgeries at once(i am not trans though) & your description of Dr. Eppley is spot on! After my second surgery with him I felt perfectly well & normal. His nurse drove me to my hitem & begged me to call him or the office if I started to feel bad because she thought I felt suspiciously well. She said Eppley cares a lot for his patients & has driven to hotels/ patients’s residences before to check up on them when it was necessary. Great doctor imo.

16
u/Wet-N-Wavy96
Thu Jul 14 18:33:11 2022 UTC
(7 children)

That’s a pretty lengthy list of concerns and possible risks for a minimal outcome. I support any surgery that provides a level of comfort and security while allowing us to enjoy our lives more but PLEASE think this through and don’t allow them to pressure u into paying a deposit if u r not 150% sure u want this… I’ve seen results in person and it was barely noticeable besides the shoulders hanging lower on the particular individual. Best of luck 🤞

5
OP
Thu Jul 14 19:00:46 2022 UTC
(1 child)

Would you say that his edited image is accurate based on the person you knew irl? Did that person go to Eppley?

1
Fri Jul 15 13:29:20 2022 UTC
(0 children)

I’d say the image is pretty accurate but I found the results didn’t translate as well in person but that’s just what I’ve seen… Others seem to be very happy with their results so there’s that.

Thu Jul 14 19:49:30 2022 UTC
(4 children)

[deleted]

2
Tue Nov 29 22:45:51 2022 UTC
(2 children)

u/Throw72away777777722 - Would you be willing to share more about your experience (happy to message privately if you are open to it) - particularly how the surgery results looked long term? I’ve mostly only been able to find pictures from a few weeks after the surgery when the shoulder rolling and scars were still pretty visible. I’m also trying to get an idea of what to expect with the recovery.

Fri Dec 2 02:09:33 2022 UTC
(1 child)

[deleted]

1
Sat Dec 3 18:14:31 2022 UTC
(0 children)

Thank you so much! Sending you a message now.

0
Fri Jul 15 13:33:05 2022 UTC
(0 children)

Well that was what I got from it with one particular example. I’m sure things have improved with techniques n such. Surgeries r different for everyone as I’m sure u well know… Some r fine with lower hanging shoulders than before, I’m sure they were more narrow but not noticeably so IMO…

14
u/Sad111Suit
OP
Thu Jul 14 14:28:13 2022 UTC
*
(3 children)

Oh boy. So I’m agender (and afab) and I struggle with having extremely broad shoulders. From the front they are about 17 in. wide while my hips are about 13.5 in.

I really want a straight and narrow, neutral frame (best examples I can think of are emma chamberlain/ zendaya) but these shoulders are fairly ridiculous and getting in the way. So I’d like to have the somewhat experimental shoulder narrowing/ clavicle reduction surgery done with Dr. Eppley as well as type 3 forehead contouring.

I had a consultation a couple days ago but scheduling is moving fast and they want a hefty non-refundable deposit… And I’ve only just seen some of the more extreme negative reviews and allegations against Eppley which is making me hesitate.

I had a breast reduction already, and it was life changing. I think I’m willing to go through this more difficult surgery, but of course it is scary to not be able to effectively weigh the risks and benefits with so little information on the procedure available and only having limited before and after photos that aren’t shot well to work with.

My biggest hang ups are the potential for a huge medical hassle and chronic pain if something goes wrong with fixation, and the fact that I don’t feel like I have an amazing gauge of what results actually look like. In all the photos I have seen, the people are never standing in the same position or the same distance from the camera and are usually wearing something that obscures the results without meaning to.

Regardless, I liked how much detail Eppley went into during our consultation, he elaborated well and that was extremely reassuring. He answered alllll of my questions and appeared very competent to me. Overall, he left a good impression. I’ll include some key take aways from our conversation here.

//////// Info on the risks+ outcomes of the procedure itself that Eppley claimed in the consult:

The biggest risk one could face is if the fixations don’t hold/ become loose for whatever reason. He said the fixation holds 95% of the time. (Really hope that number is accurate!)

Generally if something was ‘going to go wrong’ with the fixation it would happen in the first month of healing. After that you are likely in the clear.

Generally he will take out 2.5 cm of bone per side, or up to 3cm if you are tall (over 6 ft). His understanding is that the removal of an inch of bone will translate to about 0.9 inches off your total visual width per side. So if I understand correctly, removing 2 in. of the clavicle will look like 1.8 inches from the outside.

He has been doing this procedure for 5-6 years and I read on here that he has performed it less than 100 times.

The amount of fixation plates and screws he uses will depended on the patients life style, if they are more active he will use more plates and screws to be safe and if someone is sedentary he will use less.

Total cost is $22k + $7,115 surgery center fees (fees were quoted w type 3 forehead contour though so not sure if it would be less otherwise) , with 1-2 months of intense recovery time.

If you want the rundown of how the surgery works you can check out this page on his website https://www.eppleyplasticsurgery.com/shoulder-narrowing-widening/ —————

Above are the images Eppley edited of what I can potentially expect to look like after surgery. The hip to shoulder ratio looks promising from the front. Less so from the back. I’m assuming my shoulder/hip ratio will be around 15.2in /13.5 in. afterwards if I understand correctly. That sounds like a pretty reasonable improvement but again, hard to tell. Also these edited images seem a little strange/off to me the way my arms aren’t really accounted for in his projection. That is rather troubling.

Mostly I’m curious to hear thoughts on these edited images, on shoulder narrowing surgery, and on Dr. Eppley himself. Especially if you have personal experience with him, or this surgery. (Should I be afraid of him…?)

2
cisgender
Tue May 14 05:20:18 2024 UTC
(0 children)

I’ve been operated on by him twice. He discussed with me for a very long time. Always patient & happy to help. He seems to enjoy curiosity in his patients. He was open & honest about the pros & cons of the surgeries. He was transparent about the recovery, he told me hed rather that I expect the worst than to be shocked when I wake up from surgery. He didnt even want to operate on me for some procedures I wanted, saying I dont need them, but that he doesn’t have a say on what I want to do for my body & will do it if it is what I decide to do. The nurses were very caring after surgery, they insisted on contacting Eppley or the office if anything felt wrong. They checked up on me after surgery. His team is helpful, they answer quickly, provide Eppley’s opinion in quotations. Both times i went alone, but he told me he would not allow me to be alone for SWR. Ive been operated on by 5 amazing surgeons, Eppley was the most caring imo.

1
Tue Jun 25 20:28:48 2024 UTC
(0 children)

did you end up having the surgery?

11
u/mononoke_princessa
Thu Jul 14 18:37:45 2022 UTC
(5 children)

I feel like this is way too much risk for very little reward.

Thu Jul 14 19:53:51 2022 UTC
(4 children)

[deleted]

-2
Thu Jul 14 20:03:12 2022 UTC
*
(2 children)

Also. Uhm. The person above is AFAB.

6
Fri Jul 15 11:47:50 2022 UTC
(0 children)

They're not a girl; they're agender. And I don't see what agab has to do with it. If you're uncomfortable with your broad shoulders then you're uncomfortable with them.

Not saying the procedure is a good idea—I agree that it's a lot of risk for little reward—but it's fine for them to feel this way about their shoulders.

7
u/wowthisiscooleo
Thu Jul 14 18:47:31 2022 UTC
(2 children)

Yeah, that's a ridiculously expensive procedure for the work involved - removing a 1.5cm chunk of clavicle from each side, which is more typical. Frankly, it's predatory. That surgeon can go fuck himself - greedy bastard.

7
OP
Thu Jul 14 21:15:40 2022 UTC
(0 children)

He said he usually removes around 2.5-3cm. I didn’t see him or hear him mention 1.5 anywhere.

I think part of the cost being so high is that the material (plates/screws/drill bits) needed are expensive, $7,075 alone. And then the fact that he’s one of like 3 surgeons that will do it.

In the break down, the cost of the procedure itself is $14,775 and the surgery center fees are $7,115. I don’t really have an idea of how reasonable or not that is, but this website said that without insurance the typical cost of a clavicle fracture is $11-17k https://health.costhelper.com/broken-collarbone.html and I’m not even sure if that is for a fracture to one or both sides.

2
u/Durysik
Fri Jul 15 08:06:50 2022 UTC
(0 children)

I am researching the same - but in the other direction! I want mine broadened! Do you know how much you paid for all? It was all out of pocket, correct?

2
u/Revolutionary_Hair38
Sun Feb 11 14:24:21 2024 UTC
(3 children)

With all due respect i dont notice a difference even in the "good result" photo that OP posted....

If im only looking at the first one and switch my attention just to the second... it doesnt look any different to me. Im sorry to say this but her shoulders are still broad

If i look at them side by side i can see a difference, but when i look side by side for too long and too much the difference disappears its weird

I dont think its worth the risk or money or pain and suffering and inability to use your arms and waste of your life recovering from this when it may not even be the last time...youre supposed to be making the most of your transition not ageing away recovering and getting tired out over and over again. Please only have the surgeries you really need. I never said her shoulders were broad in a bad way, broad shoulders are still amazing

However there is a not-widely-known non surgical alternative. Its called trapezius botox, i had it in September 2023 and it made my shoulders LOOK like the before and after when they didnt actually change size . It gave the illusion i had slimmer shoulders by reducing the unwantedness around my neck. Like there was alot of emphasis on my shoulders and this botox lowered the emphasis if you know what i mean. It also heightened my neck which added to the illusion. A short neck gives a wide fat look like you're hunching

There is risks with botox as well and its not an instant result but try it before/if youre considering clavicle reduction first, it does make a difference but there are sacrifices you have to make, its less than $1000 and lasts 6 ish months, though you have to keep paying $1000 twice a year.

Also it helped mentally as i felt more awake and held my head high (pun intended!) as the botox is originally intended to relieve headaches. However like clavicle shortening, i couldnt carry anything heavy and couldnt clean my house. Actually ill rephrase that, with CS surgery its impossible to but when i say i couldn't with the botox, i meant it was extremely hard, but not impossible. You dont lose the ability to function its just tiring

Oh and make sure its botox you're getting i went to someone who charged less but was a botox alternative. It has to be Botox™

1
Tue Jun 25 20:48:30 2024 UTC
(1 child)

any chance you've got a before/after of this? and what happens after 6 months?

1
u/46XX_
Wed Jun 26 21:41:16 2024 UTC
(0 children)

Second this, please share more pics

1
Fri Jun 28 21:53:51 2024 UTC
(0 children)

please provide images for the botox method, sounds interesting

1
u/MyNewTransAccount
Thu Jul 14 18:09:24 2022 UTC
(2 children)

Did he show you what to expect in terms of how this will look from the side or 3/4 view?

There is some rotation of the shoulders and it's impossible to tell how bad it is from frontal photos alone. No one ever shows it from the side or other angles.

3
OP
Thu Jul 14 19:59:03 2022 UTC
(1 child)

I don’t think the rotation is permanent, just a side effect of the muscles being weak post-op. I’ll try to ask him about it.

1
cisgender
Tue May 14 05:21:52 2024 UTC
(0 children)

I believe it is permanent

1
u/Ahhbrey
Thu Jul 14 21:40:54 2022 UTC
(0 children)

Wait, this exists, guess I didn’t look too hard into it, there’s hope for me after all!

1
u/[deleted]
Wed Apr 24 08:33:08 2024 UTC
(1 child)

Hi looking into getting this myself, how much did he charge you?

2
cisgender
Tue May 14 05:22:39 2024 UTC
(0 children)

Its over 20k & I was quoted 2 yrs ago. Leif is even more expensive

1
u/Moongurlteddy
Thu Jul 14 17:01:53 2022 UTC
(0 children)

Be safe love!

1
u/[deleted]
Thu Jul 14 16:27:06 2022 UTC
(0 children)

Wow that's amazing

-3
u/Vivid-Screen-4734
Thu Jul 14 15:03:36 2022 UTC
(7 children)

Oh yeah . I’m most definitely getting this now . Great results !!!

19
Thu Jul 14 15:06:16 2022 UTC
(1 child)

this is not results

-2
Thu Jul 14 15:07:16 2022 UTC
(0 children)

Yeah i just read her comment about it . Still very realistic

Thu Jul 14 19:52:41 2022 UTC
(2 children)

[deleted]

2
Thu Jul 14 20:05:34 2022 UTC
(1 child)

See how they downvoted me ? Lmfao imagine being transgender and non progressive … anyway please do share !! I have a consult with Leif Roger’s next week

1
u/Niumxo
Thu Jul 14 20:51:55 2022 UTC
(0 children)

Honestly so rude, this is supposed to be a safe space to discuss this surgeries

4
Thu Jul 14 15:09:14 2022 UTC
(1 child)

these are edited pics not a pre->post pics, read OP's message below

-2
Thu Jul 14 15:10:04 2022 UTC
(0 children)

I did … get off me lol

0
u/hummnamalik
Thu Jul 14 16:07:29 2022 UTC
(0 children)

Considerable 💯

1
u/Additional-Bid-9103
Thu Jul 14 23:16:07 2022 UTC
(2 children)

may i ask how broad your shoulders are? and how much surgery can reduce it?

2
OP
Thu Jul 14 23:36:24 2022 UTC
(0 children)

I’m starting with 17 inches. I would get at least 1.8 inches of width reduced to be approximately 15.2 inches wide… maybe more reduced if I’m lucky. I posted a comment with more details.

1
Thu Jul 14 23:20:29 2022 UTC
(0 children)

*shoulder to shoulder

1
u/Deneve89
Thu Nov 2 23:43:40 2023 UTC
(0 children)

Do you have any pictures from the side? Is your back curve after the procedure (for example shoulders curve inwords looking like you have a bad posture)?